Rose Williams shares the realities of navigating insurance, treatment delays, and life with CF
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Rose Williams shares the realities of navigating insurance, treatment delays, and life with CF
51 views4 days ago
YouTubeCystic Fibrosis Foundation
Life with cystic fibrosis looks different for everyone. As a member of Community Voice, you can help research and care keep pace with the life you’re living and support a better future for everyone with CF. By participating in online surveys, focus groups, and committees, you contribute to a more complete picture of what living with CF looks like today. We want to hear from as many people as possible to truly meet the various needs of the CF community. Join Community Voice today: https://on.cff.
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Life with cystic fibrosis looks different for everyone. As a member of Community Voice, you can help research and care keep pace with the life you’re living and support a better future for everyone with CF. By participating in online surveys, focus groups, and committees, you contribute to a more complete picture of what living with CF looks like today. We want to hear from as many people as possible to truly meet the various needs of the CF community. Join Community Voice today: https://on.cff.
1.2K viewsJul 14, 2025
FacebookCystic Fibrosis Foundation
When the Foundation was formed in 1955, people born with cystic fibrosis weren’t expected to live to attend kindergarten. Thanks to decades of progress, life expectancy has risen dramatically, with increases in the adult population across all age categories. Today, there are more than 3,000 people with CF age 50 and older, and more than 20,000 people with CF age 18 and older. No matter where you are in your CF journey, we remain focused on supporting people with CF as they face age-related healt
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When the Foundation was formed in 1955, people born with cystic fibrosis weren’t expected to live to attend kindergarten. Thanks to decades of progress, life expectancy has risen dramatically, with increases in the adult population across all age categories. Today, there are more than 3,000 people with CF age 50 and older, and more than 20,000 people with CF age 18 and older. No matter where you are in your CF journey, we remain focused on supporting people with CF as they face age-related healt
47.6K viewsJun 20, 2025
FacebookCystic Fibrosis Foundation
Life with CF means facing challenges most will never see. Run for a reason — join Breathe Team.
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Life with CF means facing challenges most will never see. Run for a reason — join Breathe Team.
1.9K views7 months ago
YouTubeCystic Fibrosis Foundation
The Cystic Fibrosis Foundation spreading awareness about the disease through annual walk
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The Cystic Fibrosis Foundation spreading awareness about the disease through annual walk
49 views6 months ago
YouTubeWBIR Channel 10
“My advice for people with CF, who are dealing with conversations like this, about reproductive health, would be to listen to yourself and to trust yourself.” Erin Abay, an adult with cystic fibrosis who also has CF-related diabetes, knew from a young age that raising children would be a challenge. After careful consideration and consultation with her care team, Erin and her husband decided not to have children. | Cystic Fibrosis Foundation
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“My advice for people with CF, who are dealing with conversations like this, about reproductive health, would be to listen to yourself and to trust yourself.” Erin Abay, an adult with cystic fibrosis who also has CF-related diabetes, knew from a young age that raising children would be a challenge. After careful consideration and consultation with her care team, Erin and her husband decided not to have children. | Cystic Fibrosis Foundation
4.5K views9 months ago
FacebookCystic Fibrosis Foundation
A new partnership to accelerate respiratory research. We’re excited to announce a new three-year partnership between Cure4 Cystic Fibrosis and Lung Foundation Australia. Together, we’re bringing… | Cure4 Cystic Fibrosis
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A new partnership to accelerate respiratory research. We’re excited to announce a new three-year partnership between Cure4 Cystic Fibrosis and Lung Foundation Australia. Together, we’re bringing… | Cure4 Cystic Fibrosis
2 days ago
linkedin.comCure4 Cystic Fibrosis
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If you know, you know. What experiences have you had that are unique to people with cystic fibrosis?
3.2K views11 months ago
YouTubeCystic Fibrosis Foundation
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Life doesn't stop for cystic fibrosis. Love doesn't either.
1.8K views3 months ago
YouTubeCystic Fibrosis Foundation
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Register for an event with us this week and earn a free “Make CF Stand for Cure Found” wristband!
538 views9 months ago
YouTubeCystic Fibrosis Foundation
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Since the introduction of CFTR modulators, pregnancies in women with cystic fibrosis have increased significantly. When Chelsea Jones heard about more women with CF getting pregnant while taking Trikafta, it renewed her hope for having children. Chelsea and her fiancé were overjoyed when she became pregnant with their first daughter, and the couple now has two girls. | Cystic Fibrosis Foundation
3.1K views8 months ago
FacebookCystic Fibrosis Foundation
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We are incredibly grateful to our sponsors, donors, participants and volunteers for showing up and making the 41st Annual CF Climb & Run an unforgettable experience! Even with the cold, this community showed up with determination and unstoppable energy! Every step climbed and every dollar raised helps us move closer to a cure for CF-and we couldn’t do it without you! We are so proud and thankful for this community! 💜#curecf #fightcf | Cystic Fibrosis Foundation - South Texas Chapter
399 views8 months ago
FacebookCystic Fibrosis Foundation - South Texas Chapter
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Healing Cells: New Molecular Guides for Health | ANRF PRISM
14 views2 days ago
YouTubeAnusandhan National Research Foundation - ANRF
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Like many men with cystic fibrosis, Caleb Remington wasn't sure if he would be able to have children. After numerous tests and considering various options, Caleb and his wife, Tiffany, decided to pursue in-vitro fertilization (IVF). Through this method, they were able to start the family they had hoped for and are now the proud parents of two children. | Cystic Fibrosis Foundation
28.4K views9 months ago
FacebookCystic Fibrosis Foundation
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Pipeline was created 14 years ago to celebrate the connection between surfing and people living with cystic fibrosis. Join us for an epic evening, celebrating the remarkable benefits of the CF Foundation's Therapeutic Pipeline on our relentless journey toward a cure! events.cff.org/ncpipelinetoacure | Cystic Fibrosis Foundation - North Carolina Chapter Charlotte Office
43 viewsJun 25, 2025
FacebookCystic Fibrosis Foundation - North Carolina Chapter Charlotte Office
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Claire started this foundation because she knew what the cystic fibrosis community was missing. She understood how expensive and overwhelming life with CF can be, and she saw a critical gap in care. Families were falling through the cracks financially while trying to focus on surviving and healing. Claire made the decision to step in and help fill that gap. From the very beginning, Claire’s Place Foundation has existed to provide grants and financial assistance so people with CF can focus on wha
682 views9 months ago
FacebookClaire's Place Foundation, Inc.
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The Cystic Fibrosis Foundation gets ready for their annual Great Strides Walk
39 views6 months ago
YouTubeWBIR Channel 10
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Today, more than 60% of people with cystic fibrosis are adults and are living full lives.
2.4K views10 months ago
YouTubeCystic Fibrosis Foundation
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Cure4CF recently celebrated 20 years of research, progress and community in Melbourne, with a special evening at Carlton Football Club, proudly supported by Carlton IN Business and hosted by Penfolds… | Cure4 Cystic Fibrosis
6 days ago
linkedin.comCure4 Cystic Fibrosis
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It’s Cystic Fibrosis Awareness Month! 💜 2025 is a milestone year, celebrating the 70th anniversary of the Cystic Fibrosis Foundation. The theme for this year is: “Defining the Future Together.” It’s a celebration of you — the individuals, families, researchers, and supporters who are shaping a brighter future for everyone impacted by CF. Together, we believe one day the CF will one day stand for cure found! #CFAwarenessMonth #MissAmerica | Miss America
8.7K viewsMay 1, 2025
FacebookMiss America
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